Being a parent is a little bit like being thrown into the deep end and learning to swim... and trying to teach a baby to swim at the same time... and there are 68 people around you who also don't know how to swim who are telling you what to do... and meanwhile the people on the side of the pool are yelling "don't miss a second. love every minute of this. one day you'll look back and be so sad it's gone." And meanwhile you're like "if I survive until tomorrow, I am going to throw warm poop every last person who told me to enjoy EVERY SINGLE minute and see how much they enjoy that minute of their life."
No, I've never been pooped on, why do you ask? (of course I've been pooped on, and it's awful.)
Four weeks ago I went on a last-minute trip to Seattle to see my sister (she generally posts on here as "Seattle Sister" or something funny and related to what I'm writing about). I went to visit her because, unless something fantastic happens in science or magic or prayer, she probably won't be with us much longer. Because Cancer Sucks. Anyway, I prepared for what would be one of the hardest weekends of my life. Most of it is a different blog, but it's where this blog starts.
I flew out on Saturday with an adorable and charming baby.
|
DEN to SEA. Still charming the pants off of everyone. |
Although we didn't get to my Aunt's house where we were sitting until past midnight our time, with such a beautiful venue, how could I be down?
|
View from the backyard. Hardly sucks, eh? |
Personal/Sister issues aside, I now had baby issues. Within a day, I had a cuddly baby who refused to eat, couldn't sleep by herself, and puked all over everything (I enjoyed those minutes, tell you what). Although the cuddly baby part was novel and fun at first, with the consistent 104 temperatures, it was also nerve racking.
Three days later, we headed home, and the baby and I headed to the doctor. A virus, they declared, and sent us home. The next day her fever broke and, as if she had made a list of everything she hadn't gotten into over the last 5 days, she was off.
A rash developed soon after, and stayed for weeks with no hope of getting better. Back to the doctor where they declared this another virus. And sent us home.
|
Her rash is a hidden Mickey. |
The next week, another round of 104 temperatures came and so I went in again, and this time saw the doctor (I had seen the RN both other times). I was sure someone would start calling me a crazy person soon. Another virus.
|
One of the few pictures of Lily being truly unhappy. She was mad for a week. |
Three visits, and in the end was told "well, if she seemed less happy, or looked worse I'd give her something." Although this was the first time ever he had seen this baby, he kept declaring that she "is too happy to really be sick" and "this will just pass - it's re-circulating."
I hadn't gotten around to changing doctors before the next spike of her temperature. It wasn't as high this time, but I knew something was wrong. A happy, inquisitive baby does not suddenly become the opposite. I'd cleaned, I'd sanitized, I'd kept us inside and away from people. And so I was going to be the crazy lady who sees a doctor every week, and I wasn't going to take no for an answer.
Although the doctor and RN agreed we should, perhaps, do some blood work now, I went in there ready to fight, and I wasn't going to take "some" blood work for an answer. I pushed her into ordering for a urine test as well. I would have pushed for more, but google didn't suggest anything...
The first test results came back and her white blood cells were not the normal 8,000-9,000... but instead 30,000. Her hemoglobin was incredibly low as well. In a word, she was really sick.
Here's the thing, even as they called and told me that her numbers were SO far off, they also added "but she looks so good, she acts so sweet, she can't really be that sick." I am sure a baby who has gone septic looks worse than my child. I am sure there are babies who cry and cry for days without resolve. And I am also sure that, for my child, she was not even close to acting like herself. And that none of these doctors knew that (despite me telling them OVER AND OVER that exact thing).
In the end, they diagnosed her with a UTI and gave us drugs (for that, and for the rash) before sending us on our way. It's day two of the drugs, and she seems to be perking up a bit. We aren't in the clear yet, since this has been a come and go kindof thing... but I have learned a very valuable lesson.
Grey's Anatomy hasn't helped me. Grey's Anatomy has made me think that if I take my child to the doctor's office every week they will call the psych doctor and ask me if I'm crazy. Just like they did to guest star Sarah Chalke in that one episode. Not helpful.
Good Manners haven't helped me. Good manners means that if someone who knows more than you about a topic says something, you believe them, say thank you, pay your co-pay and leave. Not helpful.
The Internet hasn't helped me. The internet either freaks you out (cancer and death and cancer and death), or tells you to put a cold compress on your baby's neck and you'll be fine. But mostly, you both have cancer and are going to die and you should go to the emergency room. Not that helpful.
What has helped me is being a mother. And deciding that Good Manners Be Damned, I was going in there and not coming back without real answers. What helped me was knowing I had to speak for her when she couldn't and so, when they told me for the 4th time how she looked so good, I told them she was naturally a good kid, and I didn't care how good she looked. What helped me was knowing that there was something that needed to be fixed, because I am her mother and I knew that consistent 104 temperatures, the constant cuddlyness and the lack of eating (she wouldn't even eat puffs!) weren't right. And so I stood up for her, and made them get the urine sample (even though it took three doctors and ten minutes and two trips to actually get it). I stood up for her and asked them to run more blood tests instead of less. And I refused to say no.
It took me a long time to decide to trust the "mommy instinct" of knowing I was right. I thought I was being overly dramatic and watching too many medical dramas. I thought I was being rude. I thought I was being uneducated.
So, the moral of this story is, if you feel like something is wrong, it might really be wrong. Don't get pushed around because you aren't the one with the medical degree, so they must be right.
And cherish every minute of babies not sucking.
ha. that's a lie. She acted fine today and by 3:30, I was praying for someone to come rescue me. Just one more wave I learned to swim through. Swim through enough of them and one day you can be one of the old ladies yelling from the shore. Hopefully you don't say things to warrant fresh poop being thrown at you.