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Stayed up late obsessing again. I was about to head for bed, but found myself procrastinating, lingering in the living room. Everything felt so pointless. Going to bed, just to wake up and have to think of ways to get through the day again. Will I be able to force myself to get anything productive done? If not, how will I keep myself from going crazy all day long? How will I pass the hours? If I had a job or classes or something to actually do, I'd have different things going on each day to keep me going. Today, I have to work on this project. Ah, tomorrow will be a lighter day, so I can play around a little. Next week is the big event. But my life is primarily just about getting through one hour at a time. There are no major events to look forward to, no projects to work on, no heavy or light days, no differences in one day to the next to the next to the next, excepting how sick I will be, how severe my symptoms will be flaring. I don't know how people do this. I think of my grandmother who did this for years in her home alone, sitting in her chair and watching TV 24 hours a day. I think of other homebound folks, some who are even more limited than I. The sofa-bound days that I have are bad enough, but to be sofa or bed bound every day must be that much more tedious. How do people do this, day after day, year after year? It's all I can do to think about how to get through the next hour.
So, the ocd pops up. And I start thinking, if only I had some kind of routine to follow, some kind of schedule to be on, some kind of project to work on with goals and steps and things to do and keep busy with. And so I spend hours on this idea, and I obsess over making it perfect. And for a few minutes, I feel some relief, even some excitment. But then the reality of the situation crashes down on me once again. I can't make a schedule for myself, because my body does what it likes and I never know how sick I will be on any given day. I can't even make a general routine for myself to follow, because some days I don't even have the energy to make food or brush my teeth, and it takes every ounce of energy I have just to use the bathroom. How do I come up with any kind of routine or schedule that will allow for the vast differences in how I feel day to day, physically, mentally, and emotionally? And it becomes so depressing to me, knowing that I can't have any real goals to work towards, and I get to feeling like what is the point of anything? I give up and have a sofa-bound day even if I don't need it because I'm too depressed to think about trying to get anything done, when at any moment, the fatigue and pain or brain fog might overwhelm me and make it impossible to finish. What is the point of all of this? In my mind, I do have goals. In my head, I'm ever-aware of the things that do need to get done. In my heart, I know where I'd like to be going. But in reality, it's just another day of staring at the computer screen or the television. It's just another day of getting through the hours. Tick, tick, tick, this is your life and it's ending one moment at a time.
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