Clarity

Before I get to the nitty gritty, thought to share cute family pic. This was from Canada Day. They really went all out celebrating, me not so much here.

Debbie's adorable grandkids

To partially explain my absence from blogging, health. Saw the rehab doctor yesterday after all my therapy was done and passed. I cautioned him not as strong now after all that as the day after the dizziness, nausea, shortness of breath I had with the sinus infection returned along with general weakness, shakiness and chest pain. This despite the nasal stuffiness clearing up. Back to my primary care doctor, saw nurse who discontinued the antibiotic and thought it was neurological. I pointed out no labs/cultures were done so she ordered them. I made a followup appointment for next week, good thing I didn’t wait nay longer as they didn’t call with results which were decidedly not good. My GFR tanked. They faxed it to urologist who’s staff, after multiple calls, said if I was concerned with kidney function to see a nephrologist.

Anyway rehab doctor was most helpful, only one med left to make sure I had adjusted it correctly. So it remains to be seen if I am in acute kidney failure from the antibiotic which I may or may not get some function restored or a change in my chronic kidney disease from Stage 3 to Stage 4.

And he confirmed that my kidney pain which I originally thought was a stone, went to ER, no stone sent home, was an infection. Specifically acute pyelonephritis. The urologist had said I had a urinary tract infection but disputed kidney involvement as I had no reflux. Don’t have to have reflux to get it. Infection alone could have permanently damaged my kidneys or proved life-threatening. At the time, pain was so intense, I would have welcomed that. Remember, I had the sciatica and trigeminal neuralgia at the same time. Comments some made were extremely unhelpful and any assistance while thus suffering shot down. Except from one friend. And rides which I already blogged about.

As to why I didn’t go to the ER this time, bad experience last time. Absolutely couldn’t afford it if insurance denied coverage. And when I called about referral to nephrologist, staff said they wouldn’t do unless doctor’s notes justified it as insurance wouldn’t pay so they would check. Never did so next day left messages which they said they would give to my doctor. She was busy. Finally Monday, got through to them I needed an urgent referral. And got it, all approved same day despite doctor being gone. Earliest I could get in is next Monday. So I wait and hope I can muddle through without it getting any worse. And here I thought I’d get a break from the medical bills. Least I am fairly close to my out of pocket limit on the medical end so that is good.

Nice to have a doctor that gets it and spends time with me answering my questions.

As to what else explains it, one glance at my Twitter feed is telling. Stay tuned, it should only get more interesting #MuellerDay is coming.

Posted in Idiotarians, life stuff | Tagged , , | Comments Off on Clarity

Over A Month

Since I blogged, sorry about that. Lots of changes from the small, WordPress updating to the big, therapy helping a bit, to the biggest, politics as usual. Check out Lawfare patribotics and Eat Pray Vote for meaty stories long before the MSM gets hold of and, depending on outlet, buries them.

But first some kitty love. Rity loves to lay in the sun.

Ritzy stretch

And stretch

Ritzy stretch more

And scratch

Ritzy scratching

And it’s late and I must be off to bed before I fall asleep at the computer.

Posted in cats, Idiotarians, life stuff, neuro MS stuff, web design WP | Tagged , , , | Comments Off on Over A Month

Lots Of Changes

Just realized I hadn’t posted in several weeks. Many changes since. First a pic of my nurse cat kindly taking my spot. Maybe keeping it warm for me, maybe a hint to go pet her. Pets can be great comfort.

Ritzy in my spot

A while back, last month actually, several people were very kind and set up a Lyft account for me so I could get rides to the doctor easier. There were a few instances, surgery and procedures that required a friend be with me even if using it, so friend took me. I really appreciate their generosity as it was very useful and my friends that took me before and while using. And they all helped as my medical bills were running around $1000/month. I was told it would last a long time but they like my daughter thought rides were inexpensive, little over a dollar for short trips. Nope $5.50 just to go to the pharmacy, barely a quarter of a mile. It is expensive but lots faster than a taxi. One appointment, woman was waiting over an hour for the taxi when my Lyft driver was there within a minute. That money is gone and I am on my own. I have researched several options, and I am detailing them here in case others might be in similar circumstances and need help.

Dial a Ride requires documentation from the doctor, going to Phoenix for an interview and take a test on getting on and off the bus and simulating environment getting to and from the bus, indoors, and light rail, outdoors. Mind you test does not cover actually walking to and from the bus stop. Just to get to my physical therapy would require walking to the bus stop and a change of busses and walking from the bus stop to the therapy department, over a mile of walking in the hot sun and waiting at the bus stop for busses, over 100 most of this week and on into the summer. MS and heat do not get along, it makes symptoms worse. Probably not too good for the sciatica either. And no. it is not a flat fee of $4, they charge $1 a mile too if they determine you don’t qualify for ADA. Interesting depending on city, it is available either city wide or near bus route. And one would have to change service if traveling to Phoenix. As it is a shared service like the bus, expect long wait times and travel to take much longer. Not exactly ideal. They do have a reduced fare program and that was probably it. Reading further, they have different levels of eligibility, meaning may have to take the bus anyway for some or all transportation. Wait time to find out if meet their criteria is around three weeks. They decide not a doctor.

Next option, Ride Choice, reduced fare taxi service but that only provides for $100 worth of taxi service. Not sure how much taxis cost but using Lyft, that would cover only two weeks of physical therapy. Shorter application too, same Valley Metro decides. Here’s some fun comparisons between the three, Uber, Lyft and taxis. Interesting about the strict terms. As my Lyft account was set up for me, I didn’t agree to any. Did to Uber but have not used it. Lyft tells price up front so no surprise. Rider rate drivers and vs vs.

I checked East Valley Adult Resources which provides services for seniors who meet strict income guidelines, less than Medicaid, AHCCCS in Arizona. I make more than that but one of my medicines alone cost close to three times my AGI. I get help there which is a good thing cause the coverage gap kills it for me. If I ever lose that, I won’t be able to afford my medicine. Come to think of it, if I lose Medicare, I won’t either. They recommended I check out About Care which was next on my list.

About Care was near perfect. It didn’t have an income limit. They do say you need a backup plan as they may not always be able to provide rides. And it has to be scheduled a week in advance. They provide other services too. What I liked most was this from their website.

Mission: To deliver caring and compassionate support services using trained volunteers with special concern for the elderly and physically-challenged homebound residents of Chandler, Gilbert and Queen Creek.

Goal: To encourage and enable independent living by assisting our neighbors to continue living in their homes with dignity and self-respect.

I especially like that they want to assist us to continue living in our own homes. Having the advantage of working in a few nursing homes, a shift here and there, and seen family members consigned, one for a few months after an injury and another, well just say it was not something I would enjoy. Claustrophobic here, I do like windows, space around the bed, creature comforts like books to read even a TV. None of that there. No, I will stay home and my sister will NOT let me be put in one.

Update on About Care and Lyft: their drivers are volunteers and I found out they don’t like to drive in the heat and as temperatures lately have been a bit high, 188 tops, no rides. They do suggest having a backup which for me is Lyft. Which I now pay for, get email from too. Another surprise there, one of my drivers told me about weekly discounts. Have to check my inbox early Sunday morning as they are limited but do help. I flagged Lyft as a VIP so email goes there, easier to find as I get lots of email. More unread email than Hillary Clinton, lot from lists, tons of political spam so having the VIP option is wonderful. Thanks Apple.

Almost forgot other options, as a veteran, it was suggested several time I use the VA. Not only do I not meet the guidelines, Medicaid income cutoff cause not service connected disability but the one VA hospital here is nationally known as the worst in the country. People die before getting seen. Wasn’t impressed with that suggestion. I prefer to die at home without the aid of a nursing home or VA aiding the process. Think I’d live longer too. Given a choice, if a veteran and can meet AHCCCS income qualifications, use that first. VA option of last resort. There are resources that provide additional help too.

Other changes too. Due to the increased data usage from using Lyft, I had to change my phone plan. And due to several features on my phone, notifications and app refreshing in the background primarily, my battery life is rather short between charges. Latest iOS update gives a warning that I need to replace the battery. And that requires being without my phone for a week. Not particularly doable seeing as I need it to obtain transportation. So I upgraded a month early. I rather be safe than sorry. Actually, it will be a little less expensive each month the way I did it. About the same time my internet speed dropped. So I called to find out why. Long story short, I could up the speed for $5 less a month so I took it.

Which led to the last change. My photos finally uploaded to iCloud and are available on all my devices. Which is handy for blogging on the computer. Would be if I could drag and drop the file into WordPress. Not sure why got error message. Off to the forums to find out why. Had to drag it to the desktop first. Bother! OK, found out it is a problem in Photos since 2015, never fixed. Designed to use the share button with various platforms just not blogs.

Thought to add other thoughts on transportation outside the Greater Phoenix area. Moving on to Houston, Texas, my friend Kiril gives a rundown on it’s Metro. He also uses an aid, a beautiful walking stick. Kitty detail is awesome. And beautiful.

Update: Kiril has the post up now debuting his new walking stick. Perfect!

Posted in Apple and Evil, life stuff, neuro MS stuff | 2 Comments

Babies

Chessie had babies Friday, 5 tiny, black kittens. Ollie is the dad of course. Might remember Ollie was named after my Bishop who has been absolutely wonderful to me with all I have been dealing with. Still have health issues but enough of that, enjoy the kittens. But first, the nosekissies. They are rather fond of each other. It’s so sweet.

Chessie and Ollie nose kisses

And their kittens, so little, so black, so hard to see but they’re there.

Babies there, all of them

I know, I’m a bit slow but think I live on Twitter. Want more meat than kitties? Try Louise. She’s a top notch reporter.

Posted in cats, life stuff | Tagged | 1 Comment

Driving In Style

My sis took a turn driving the old tractor around the farm. She’s so little had a bit of a time getting in the seat and reaching the clutch. But she enjoyed herself.

Debbie driving tractor

Not just any old tractor, a 1948 International Harvester McCormick Farm-all tractor… 5 speed, dual brakes. Spiffy!

Her son knows how to keep her happy. And she me cause she sent a pic.

Beats collecting and cleaning eggs.

Posted in amuse me, life stuff | Tagged , | Comments Off on Driving In Style

Cleaning

Images that didn’t upload. WordPress needs to fix their mobile app as it fails to upload about half the time. Can’t use Safari as images always come out upside down when I try. Might try Chrome. Would use the computer if Photos would finish updating so it would be consistent across all platforms. Let’s see what worked today. Ritzy in her usual state of repose.

Ritzy lounging

Now, after finally updating the OS, fan is blowing full bore so off to reset the SMC.

And here I thought I was just going to lay around with an ice pack and hot cat for the pain.

Posted in Apple and Evil, cats, life stuff, web design WP | Tagged , , , , , | Comments Off on Cleaning

Success

The loop monitor is out, was stuck to my chest. Interesting despite sedation, Versed 2mg, pain medication Sublimaze, 100x as potent as morphine, and anesthetic, Lidocaine numbing the area, it hurt when he pulled it out. Adhesions were cleaned out too. It was conscious sedation, little more than I used to get when I had MRIs but not enough to put me to sleep. Versed is supposed to make one forget everything. I didn’t. Felt fine after until the lidocaine wore off. So I am a bit sore, won’t be washing dishes any time soon. It will heal and be much better. So what will I be doing? Sharing cute pics my sister sends of course. Willow getting ready for church.

Willow

And Quenty in the tenty.

Quenty in the tenty

Debbie’s grandkids are just too cute. Love them from afar.

Also out, Bannon on the National Security Council, yay! He never should have been there in the first place. And the National Intelligence Director and chairman of the Joint Chiefs of Staff should never been removed. What part of National Intelligence Director doesn’t belong on the National Security Committee? Guess he is correcting his stupidity seeing as the world is on fire. Korea – nukes, Syria – chemical weapons, backed by Russia’s nukes.

However, Jared Kushner is still in charge of practically everything including making over the government to be more like a business. We are not customers, we are citizens and the government should serve us not the reverse.

It is a mess, twitter causes #IndependentInvestigation @StandUpRepublic

Posted in Idiotarians, life stuff, simple pleasures, WWIII | Tagged , , , , , , | Comments Off on Success

Hectic Schedule

One reason I haven’t posted last couple weeks or so is pain, both physical pain from previously blogged causes and emotional pain from watching the news. I’ve tweeted a lot about that so won’t belabor it here. I will share a pic or two depending if they uploaded of Ritzy, haven’t shared one of the cat in a while. She likes to sun in the morning.

Ritzy suning

She’s quite fussy about the water, preferring drinking from a slowly dripping faucet. Lately she has thrown me a curve ball and has been drinking from my cup instead. Here’s she’s deciding.

Ritzy at the drinking spot

Been rather busy with various appointments, tests and procedures to find out and potentially fix my health problems. Easiest one was the chest pain which was as I had surmised. The loop recorder the doctor put in a year ago to monitor why I kept passing out had calcified so that when I move my arm it hurts. A lot. That and the fact it was only rated to 1.5T MRI and I need 3T for the MS is why it’s coming out. Reasons I was falling were quite simple. The blood pressure medicine the doctor prescribed tanked my blood pressure. And I would fall asleep sitting up and keel over. Both fixed.

Sciatica, another simple one, from disc herniation on the other side. They need to fix but doctors tend to go the conservative route. That means injections and therapy first.

Kidney stuff may be related to the disc or may be related to the MS. Going to have more tests to find out what’s up there.

Biggest is the consult with the new MS doctor that I am having trouble getting a ride for. Neurologist my primary care doctor referred me to disputed the diagnosis made by a MS specialist who actually knows how to read a MRI. Dr Vollmer is one of world’s leading experts in MS too, read writeup. Too bad he moved. Don’t diagnose off a MRI anyway, shouldn’t at least. Should go by symptoms and a whole battery of tests before making such a devastating, life changing diagnosis. As to the MRI, haven’t seen it. He didn’t get it, just the report. I would have liked to have seen it. I do have discs of prior MRIs. ENT doctor I had referral to gave me latest one. I would have liked to compare them. Easy enough to read them provided one has the software and a functioning superdrive. And proper training.

Posted in cats, life stuff, neuro MS stuff | Tagged , , , | Comments Off on Hectic Schedule

Trifecta

Not the best kind: sciatica, kidney stones and trigeminal neuralgia. Worst was last night. Most excruciating pain ever. First one passed mostly through the night and later Friday morning. This one got stuck right above hip where sciatica starts. It’s a little lower now so hoping lots of water will flush it out. Safe to say I won’t be doing much.

Why I didn’t go to the ER? First stone, my doctor told me to and all they did was a CT which showed the stones, gave me a shot of Toradol which did nothing for the pain, absolutely nothing so I always went the flush it out route. Mind you, I would go if it didn’t move. Suffice it to say I won’t be doing much today.

So, maybe a cute pic to bring cheer. Chessie greeting Lux with a nose kiss. Debbie will be giving her a lot of loving as she is having a hard time with the wind and cold -8C.

Chessie and Lux

Would share more but reached my limit tolerating sitting.

Update: got desperate, got checked. They didn’t find any stones, just cysts. Had a thought as I was leaving: hope that wasn’t my urine sample they left on the counter without testing it. That’s the state of modern medicine. Do the bare minimum. Who cares if one is in pain. Sad.

Posted in life stuff, neuro MS stuff | Tagged , | Comments Off on Trifecta

Made My Day

Debbie is always sending the cutest pics of her grandchildren. This one of Willow is no exception. Brought me happiness.

Willow playing

And I made her day earlier in the week with this post from the Hill. Canada has taken in Yazidi refugees and survivors of Islamist extremism. Way to go Trudeau. We did nothing for them under Obama excepting private charities such as Mercury One and are doing nothing for them under Trump far as I know. Waiting to see if that changes. We need to welcome refugees fleeing intolerable conditions.

Posted in immigration, life stuff | Tagged , | Comments Off on Made My Day