Showing posts with label Cross. Show all posts
Showing posts with label Cross. Show all posts

2007-11-27

Radiation Tan - Not the look I was going for!

Following my chemo, I was sent for radiation. They really wanted to make sure I was done with the cancer and make sure I wasn't going to get it again. So,here is how it goes.

Just before my 5th chemo treatment
(out of 6), I was sent for a consult with the radiation specialist. This is where he outlined what was going to happen and the possible dangers attached to radiation. A few that stand out: it will make my bones fragile and I could break a rib just by coughing; it could also give me lung cancer; heart problems, but those are more common when breast cancer is on the left; and of course I could wind up with the ever popular frozen shoulder. Having been through the frozen shoulder twice (once for each shoulder) I was really determined to not have that happen again - particularly as my right shoulder still didn't have full mobility!

Alright, so now he has scared me enough that I am beginning to have second thoughts about this whole treatment course. Of course, I managed to wise up and use my little brain and realized that he was giving me the worst case scenario. Then I went through the whole, yes, well, the last several years of my life have been worst case scenarios - if it weren't for bad luck I wouldn't have any luck at all! Then I figured, well, what's the worst that could happen? I could die? I am not afraid of dying, I have no kids, I have done a lot, I could do more, but, if it is my time, so be it. Besides I felt that somehow, my luck was due to change.

The next step, was to tattoo marks on my torso so that they could position me exactly the same every time. Three little dots, very boring for a first tattoo! They ran me through the machine to make sure I wouldn't get stuck or panic or something. No, really it was to figure out the positioning needed and trajectories and other technical stuff, so that they put the radiation where it was needed.


I was then (finally) sent off to Physio Therapy. (I say finally, because I had started to have signs of Lymphoedema which will be another post.) Then I had my last chemo treatment and a wait of 5 weeks before they would start the radiation.

The wait is so that your blood has had a chance to recover from the chemo before they start bombarding you with radiation. Treatments for the radiation were every day Monday through Friday for 5 weeks, 25 in total. During this
time, I was also being wrapped for the lymphoedema every day as well.

The treatments themselves are easy, you take longer to change out of your street clothes into a gown and getting settled in the exact position than the actual treatment. Then of course, getting dressed again.

For breast cancer, you lay on your back with your arms over your head, holding on to little handles. Then the techs shift you around until they think you are in the right spot (and boy, did they get a workout shifting me). They then leave the room and the machine whirs and clicks, then it moves to the second position and whirs and clicks some more and you are done. The staff comes in to move the bed and help you get your fat body upright and you leave. Only once did they have to add a couple of seconds to the treatment and that is really all it was, they moved the machine back to the first position and dosed me again. It had been too short the first time.

I mentioned earlier that my right shoulder was still not completely mobile. Well, this position is the least comfortable position for an arm that has restricted nerves and blood flow. I had to use my left hand to pull my right arm from over
my head.


My skin is very, very fair - pasty you might say. So, I now have a perm-a-tan over my breast. Yes, just the one and under my arm too. In fact it is darker under my arm. As that area so rarely ever sees the light of day, it tanned first and of course went to burn first and peeled first. Of course, being winter, it looked like the negative of a picture of someone that had been in a bikini for the summer.


The staff told me to shower everyday, but avoid soaping the area that was being toasted and of course don't wash off the marks around my tattoos. I was to then put cornstarch on the felt marker so that it would not rub away. They renewed the felt marks everyday, so I put cornstarch into an empty spice jar and would shake some out onto the marks before I got dressed. However, I hadn't rinsed the bottle well enough, so I spent the 5 weeks of radiation smelling like
rosemary. Better than onion I suppose.


Once I started to peel (at about three weeks) they told me what kind of lotion to buy and I started to apply that daily as well. I was very lucky again, as I didn't get the oozing blisters that can happen with radiation. It was just a burn that then peeled and became a tan once all was over with. I was a bit tired during the treatment phase, but it wasn't until after I was done that the exhaustion caught up with me.


Fortunately for me, the Cross Cancer Institute has a volunteer driver program, as last year was the first time in forever that we had snow before Halloween and lots of it. This year, our snow has only just begun a couple of days ago. As an asthmatic, winter and walking do not mix, throw cancer treatments on top of that and well, lets just say, it was a wretched winter for me. Not to mention that I was cold, I couldn't seem to get enough hats and scarves to keep my head warm. Normally during winter, I can get by most days with just earmuffs, but this winter too I can't seem to keep my head warm in spite of having my hair back. Oh well, I guess I will just have hat hair all winter long!

Those are the only photos I have that show the tan and peeling without showing too much else.


Good evening.




2007-10-21

Chemotherapy and the Cross

So, my first post on my Breast Cancer left off with me saying I would tell you about chemo in another post...here it is - finally.

The Cross Cancer Institute (CCI) is Northern Alberta's cancer hospital. You can get your chemo locally, but if you have to have radiation therapy you have to come to Edmonton. Needless to say, it is a busy place. When it first opened it was referred to as the W.W.Cross, after the man who started it. I am not sure when they started to refer to it as CCI & dropped the WW, but my first experience (many years ago for a friends son), it was the WW Cross and in my tiny mind, it still is. Especially as the college I went to was CCI. Change when you are this old, is hard!

Yes, I'm getting there.

To recap a bit though.
  • May 15 Mammogram
  • June 5 Lumpectomy & Sentinal Node Biopsy
  • July 5 Axial node surgery (lymph nodes under right arm)
On July 24th, I went to the Cross for a New Patient Information session. This is where they tell you a bit about the place, show you around the various treatment areas and tell you about the other services available. The tour is run by volunteers. There are volunteers everywhere in the Cross, they come around offering drinks and cookies. They are there to escort patients when they don't know where they are going, they run the gift store and the bookstore and information centre.

July 26th, I had my first consult with my Dr. This is where I learned about the type of cancer I had and the treatment plan. I had hormone positive breast cancer, a 1.5 cm tumor was removed from the top of my right breast, they gave me a 2/3 grade rating on the severity. The sentinal node was 1+, 2.5mm, which is what determined they would take out the lymph nodes, but of the 6 nodes they took, none had any trace of cancer.

So, the plan was to be as aggressive as possible to try to make sure it doesn't come back. I was to get chemo, radiation and then have my estrogen killed. Six to nine months of treatments.

I had a muga the next day (some kind of imaging of the heart) to make sure I was fit enough to have all this abuse piled on me. Then I had appointments for classes on what to expect from chemo and what to expect after it started. I was given pamphlets and information sheets on dry mouth, eating right, soft foods, how to manage my energy and anything else they could think up. They do a very good job of making you feel comfortable there and making sure you have all the information you could possibly want.

The actual treatments didn't start until August 8th (mom's birthday), when I had my first blood test. The 9th was the first of six chemo treatments. My sister came with me for my treatments, the first one, the nurse told us all about what she was doing, that I could walk around if I felt like it, but that I couldn't leave the room. I couldn't leave the room, because if for any reason the toxic chemicals they were pumping into my veins spilled outside of the room, it would result in having to shut down the floor and evacuate and emergency services would have to come and its hazardous waste and the world as we know it would come to an end. Or something like that.

So, of course, both of us being a bit nervous (well, me anyway) and leery of the whole process, got a bit carried away and we are a sarcastic, witty pair at the best of times. But the nurse played right along with us. Talking about steel gates crashing down around us and lights & bells and action movie heroes. Well, anyway, we had a laugh. Then it got boring. It takes about four hours to pump all that crap into a body. We had each brought books and sis brought along a crossword puzzle book, which we managed to involve the woman in the bed next to mine. Four hours later, we were let go, so we went shopping. It was a bright sunny day. I now tan really easily in my face! Oops!

Well, the next day, I was okay, a bit tired, not a lot of nausea, but, didn't really eat a lot. I had to inject myself for seven days and take certain drugs at various times and durations around the chemo dates. It was about the third day after chemo, sis had gone home already, when the pain struck. Every muscle and joint in my body ached, I felt like I was 900 years old and it was an effort just to go to the bathroom. Thankfully, I had plenty of ready to eat food on hand. I love living alone, but, this is one time when it would have been nice to have had a husband. By day 5 I was in agony, then it got better, in total the body aches only lasted about 5 days. I was very lucky, I was not vomiting, I was able to eat, I didn't have much appetite, but, it could have been so much worse. I got fungal infections in my throat, so wound up with a very disgusting mouthwash. Other than that it was not a horrible experience.


before shave

I lost my hair after the first treatment, just a week or so before the second treatment. I went in to the Cross as they have volunteers in a hair salon and they shaved it off for me and lent me a wig. I had my (very bad) shave Aug 30th. Sis, eventually gave me a clean shave, but, I seem to no longer have the photo on my 'puter. Oh well, it felt much better, as the stubble that was left from the first shave, would poke through head scarves.


bad shave


Having had the lymph nodes removed, limited the chemo to one arm, so by the last appointment, the nurses were having a bit of trouble finding places to put the needle. One time, I bruised as soon as she put it in, so she had to move it, then I bruised from the rubber tourniquet!


Just one of many bruises

Sis managed to come down for three more treatments, then I took the bus until I could get on to the volunteer driver schedule. Usually she just dropped me off then went and did something else, it is really very boring to sit and watch someone with an IV in their arm. It is really very boring to be that someone. I am very glad that I am such an avid reader, I can't imagine what non readers do in situations like this. So, she did my wash and cleaned my apartment and did things for me that I just had no energy to do. After the treatment, we would go and shop or one time we went for a drive out to our grandparents homestead with some cousins. I'll post on that later too.

I will post later on the radiation treatments. As for the chemo, it was pretty much the same, six times, fine for a couple of days , achy for 5 or 6 days, then fine again. As I said, I was lucky.

Good Afternoon.

P.S. there is no proper website fro the Cross, but for those that are interested and like links, here is one for the Alberta Cancer Board, they have a link to the Cross's Patient Guide and how to get there & contact info etc. (all in pdf )