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From New Jersey-
Arden Courts,
a memory care community, invited the The Very Reverend Tracey Lind to
speak of her journey living with Frontotemporal Dementia (FTD) at St.
Michael's Episcopal Church in Wayne.
Since Lind's FTD diagnosis, she set out on a pilgrimage with her wife
Emily Ingalls, to travel the nation and world to tell their story
and help destigmatize the "dementia" diagnosis. Visit her website and follow her blog. Lind was seen on 60 Minutes in May 2019 when they introduced
millions of television viewers to Frontotemporal degeneration, the most
common dementia for people under 60. [The segment was re-aired on
Sunday, Sept. 15.]
"Out of pain comes joy," said Lind. She is facing this disease. "I am
going to see what I can do with it. My curiosity is getting me through
it. Otherwise I’m going to roll up in a ball." Lind is telling her story
and sharing "the lessons I am learning and the gifts that I am
receiving and the grace that I'm discovering." She is
stimulating conversation with the groups she speaks to.
More here-
https://www.tapinto.net/sections/health-and-wellness/articles/living-with-dementia-tracey-lind-tells-her-story-from-the-inside-out-8
From Cleveland-
On Election Day 2016, I was diagnosed with Frontotemporal Degeneration (FTD). This early onset dementia brought my career as dean of Cleveland's Trinity Cathedral to an abrupt and unexpected end.
Like millions around the globe, I now live with a neurological
condition that is not fully understood, and for which there is limited
treatment but no cure.
Dementia, per se, is not a disease, but rather, an umbrella covering a
broad category of symptoms. Alzheimer's disease is the most common form
of dementia, affecting 5.7 million Americans of all ages.
Dementia is in my DNA. My mother, maternal grandfather and two aunts
all died with it. I watched my mother and others hide their dementia,
ashamed and embarrassed, as if it were a weakness, a punishment, or even
a sin. I liken dementia to cancer in the 1960s or AIDS in the 1980s -
spoken of in hushed voices with an undercurrent of blaming the victim.
If only she had eaten less red meat and more green vegetables; if only
he had done a crossword puzzle every morning; if only she had practiced
yoga or meditation for the past 10 years; and so on. No wonder people
with dementia want to hide it.
More here-
https://www.cleveland.com/opinion/index.ssf/2018/09/on_living_with_dementia_-_a_ca.html
From New Jersey-
