I'm So Out of Practice That This Post Has No Title

They say the third time's the charm. I guess we'll find out. Because, after a bit over a year hiatus, I have decided to come back to blogging. When I stopped, I didn't think it would be forever, it would just be until I fixed some things. Well, I fixed those things, and more things needed fixing. And I was going to come back, only, I was happy. Really happy. And the idea of coming back? I was burnt out. I realized that the blog had created a harpy that pretty much capitalized on everything negative.

That's not who I am. So I decided to take a break. A crappy experience at my fourth BlogHer made the decision easy. I don't belong there any longer. And the fact that I wasn't missed and felt a bit sorry for myself made it easy to stay away. Friendships changed, and passed away, writing evolved and seasons changed. I am a different person from when I started. So if I came back to blogging, I had to decide, for whom did I want to write?

As my children grow, so does their need for privacy. The stories aren't mine to tell anymore; they belong to their owners.My children have a presence on the Internet, I have to be respectful of their boundaries as much as possible. This left me with a conundrum: what do I have left to say, if not about them? I have my own stories, it's true. I just had to find them again.

When I started this blog six years ago, we were deep in the throes of autism in our house. The Autism Monster had eaten my children and I first started blogging to make sense of it all. Times change. It wasn't the autism that changed...it was me. I have more patience, and I have more tolerance, I think. I missed writing, but I didn't miss who I was becoming through the blog scene. I needed some distance.

I started writing to write. I was never really comfortable with what this medium has become. I don't like selling my soul for products. I am not a shill. And maybe others can get free stuff and not be influenced in their reviews. I could not. Or at least, I was never sure if I could or not. So I decided to just...stop. I dropped all forms of social media for a long time. I stopped writing everywhere.

While I was gone, I thought hard about what I wanted this space to be. And I decided I am not just going to come here and complain. If I need to vent, I will find

a therapist.

I have been there, and done that, and she released me because she decided that under the circumstances, I was doing damn well. So. What I want this space to be is a dynamic, growing changing life record, of sorts. Many things have changed, as you will come to see, if you follow along. Two graduations, some braces, a joy found, a childhood lost...these are the stories. Would you like to follow along? Come back, grab a cup of tea, curl up with your cat, or a comfy pillow, and we'll begin. Again.

Autism is a vampire and it sucks out your soul

Today was promotion Sunday, an annual event through our homeschool group. It is usually a big deal with all the kids going up to receive their promotion certificates, and graduates of both the eighth grade and high school. I don't have any pictures; we barely managed to get there. Today was one of THOSE days. Those who have kids with autism will understand. We just keep on, keeping on, trying not lose ourselves.

My son is twelve, going on sixteen, he thinks. He has a real problem with being told what to do.

every interaction between us seems to go like this:

Me: polite request
Him: protest
me: again,with the polite request
Him: "logical" reason why he should not comply
me: a bit more forceful request
Him: complaints about how I think he is stupid/difficult/it's not his fault, it's mine
me: [frustration ensues...either walk away and take a deep breath or yell]
Him: [depending upon what I do] yells at me, how I am such an idiot and I don't get it..
me: come back,and try again, cajole/plead/explain why he would do whatever it is I wanted him to do in the first place
Him: [grudging compliance]

Part of the problem is that he and my youngest are absolutely oil and water these days. JBean, my youngest, is usually a very happy little girl. Unfortunately, this extends to her high-pitched voice, often singing, or talking, incessantly. It makes my JBear, my son, crazy. He starts lashing out, and getting on edge, and will say mean things to her about can't she just shut up, and her voice is driving him crazy...hurtful things. She doesn't know how to fight back verbally (nor should she learn...he is out of line) so she does one of two things. She will either hit him, or yell at him. Neither of these things are particularly useful in dealing with him, and often make things worse. Where am I, you ask? Probably the bathroom, or taking the dog out, or loading the dishwasher....I cannot be in their face 100% of the time. They have to learn not to aggravate one another. Of course, when there are problems, I am always right there. Often the damage is done.

My son has no remorse. I realize this is part of his autism, no matter how high-functioning it may be. The lack of mirror neurons that allow empathy are definitely a hindrance for him. As a teenager, his cerebral cortex is not quite connected to his brain. He is in fight or flight, all the time...he sees the entire world as against him. He is rarely sorry, and doesn't think he ever does anything wrong. He does not admit mistakes and generally has a self-absorbed entitlement attitude. I did not raise him this way, and am still trying to fix it. Often, I feel like I am banging my head against a wall. I know he is trying...but he just has such a long way to go. I feel like I am not helping him much. I seem to be the problem, as far as he is concerned. He is oblivious to his role in the whole mess.

Today, while I was trying to finish in the kitchen, he was having a hard time with his sister. Everyone ended up yelling at everyone else, and I had had enough. JNerd tries to out yell them, and it doesn't work. I told them all I was not going to live like this anymore; I have had it. We weren't going today, not with the way they were acting. So I decided to take a drive for a bit, to cool down. After about ten minutes, I came back, a bit calmer. Apparently, all hell had broken loose while I was gone. My son had tried to goad my husband into a physical altercation. He hit my husband, as hard as he could. Apparently, it was side-stepped, and I was able to defuse the situation. We ended up going to the ceremony, and everyone was on their best behavior.

When we returned home, I tried talking to my son, and he was not receptive at that point. He hates to be called out on his behavior, and will deflect as much as he can. I stayed calm for the most part, and finally was able to get through to him, for now. Eventually, my son did admit he was wrong, but it was several hours later.

Remember, on top of this, I also deal with a younger one who was diagnosed with autism, as well. She has her own issues, usually pertaining to transitions, change, rigidity, anxiety and MamaMustBeThereAtAllTimes. The worse he gets, the more she clings to me. The more unrest in our home the more she clings to me. She tries so hard, but she has a hard time coping at times. That means relying upon me, more often than not.

I am DRAINED. Exhausted, and really questioning every decision for my children I have made thus far. I am hoping tomorrow will bring more clarity. So tonight, I sleep. And pray and hope that I figure out what I am doing wrong. Autism is hard. Teen boy is hard. Putting the two together: feels insurmountable. My migraines have gotten more frequent and worse. I don't sleep well. I am, so far, staving off the depression that threatens to crush me. (I eat well and exercise, both help) But so help me, if I survive his growth into manhood, I hope it is with my soul intact.

Help, My Son Won't tell the TRUTH! (and yes, I CAN handle it)

Tuesdays are flashback days around here...which is really just an excuse for recycling a post you might not have seen. This week's post is about my son and the stage he went through with lying. Thankfully, it was short-lived, but at the time? I thought I would lose my mind.

Lately my son has been experimenting with creative truth-telling. Yes, it's a nice way to say he is lying his butt off. And it isn't like the things are that important. These exchanges are taking place with increasing frequency:

Me: Did you clean the cat box?

JBear: Yes, I cleaned the cat box, both the office and the bathroom. [earnest look on his face, not meeting my eyes, but then, with autism, he rarely meets my eyes]

[I check the box, it has not been cleaned]. Son, why did you tell me that you cleaned the litterbox when clearly you had not?

JBear: But I did. I cleaned it!

Me: JBear, I need the truth.

JBear: [scowling defiantly] I didn't clean it. I don't want to.

And then he goes and does whatever he was told to do in the first place. This can be anything from putting his clothes away, brushing his teeth, reading a book vs. playing Nintendo...

Now I know as a mother of a child with autism, I could be pleased by this latest development. Some idiots experts will tell you that a child with autism cannot lie. I present, exhibit #1: my son. And besides, being lied to is damned annoying. I want it to stop.

So I had a Come To Jesus talk with him today, and laid out some ground rules for him.

* You must try not to lie. A man/woman/person is only as good as his word, his honor is all he has. If he cannot be trusted, he will not have friends. (yes, some people hang out with other people who lie to them, but how do you ever know if they are telling you the truth?)

* Honor, meaning whether someone sees you as a person who is good and has integrity (can be trustworthy) will follow you the rest of your life.

* Character is who you are when no one is looking...do you take that cookie? Do you return that wallet?

* Your actions become your habits. If you continue to lie, it will become second-nature and you may not be able to stop.

There are such things as "social lies," and these can be complicated. But some situations are:

* If someone asks you if you like their haircut, I don't care if you think they look worse than a dog with it's butt shaved walking backwards. You do not get to say that to the person. It hurts feelings.

* You are not allowed to call your mother,"Old Lady," even if you do think 42 is old. There is a certain amount of respect that someone gets just for being older than you. Just because you think it doesn't mean you need to say it out loud. Engage your mouth filter.

* There are times you do not have to tell the whole truth to everyone, always. A bit is sufficient. People who call on the phone do not need to know your mother is in the bathroom, pooping.

* Sometimes it is kinder not to share the entire truth. You do not have the right to rub your intellect into others' faces, or make them feel small. Even if you really do know more about medieval weaponry than they do. /

* If you think someone is an idiot, keep it to yourself. Fighting words can get you into a fight. Yes, there are many idiots out there, but believe it or not, few actually know they are idiots. That's why they are idiots. Do not believe you are doing anyone a favor by removing the blinders from their eyes. They won't believe you anyway.

* There are times it is easier to go along with what someone says, rather than argue them into the ground. Exceptions to this are when your values are compromised, laws are broken or you feel uncomfortable in any way. (refer back to when people are idiots)

We have a long way to go in the area of truth-telling, but I believe we have a start now. Now comes the repetition. Did I forget any social lies that he needs to know?

What's the craziest white lie you know of...either your own, or someone else's?

Why you need large balls of fur in your house

Pets are weird. Not as weird as kids, but weird enough. I know so many people who don't want to bother with animals, because they are a pain in the butt. And yes, they are. But honestly? They bring such joy to our lives. No one loves you like your dog. Ever. And cats? Are like little codependent vampires who sort of love you. When they want to.

The beautiful thing about pets? They seem to understand instinctively about kids with autism. We have a cat who is a bit standoffish with everyone else. Except for my son. I would say she is mostly his cat. She sleeps in his bed, and helps him to calm down. She tolerates him better than she does anyone else.

And this weekend, I found out just how wonderful our Newf is. I have plans to make her a therapy dog at some point. She proved she just might be up to that task. JBean was throwing a tantrum (yes, again) and sitting on the floor. The dog was lying across the room. She army crawled to her until her nose was just inches from JBean's feet. Then she just waited quietly for JBean to come to her. And they laid on the floor together, kid and dog, just...being. Yes, she calmed down. It was good.

Like this:

how about you? Are you a cat person, a dog person or do you prefer no fur balls at all?

T, who figures the fleabags are worth most of the trouble they cause

How To Transition a Child To a Gluten-Free Casein-Free Diet For Autism Treatment

There is a theory in autism treatment that along with a sensory diet, kids with autism may benefit from eliminating gluten and dairy proteins (called casein and whey) from their diets. Gluten is found in grains and nearly all mass-marketed breads, cereals and baked goods. Casein is found in all milk products. Many kids with autism do not process dairy or gluten correctly, and over time, it can hurt their gut. Some refer to this as "silent celiac's disease." The scientific veracity of the diet won't be debated here. My son has been on the diet for over five years and we have seen improvement. Many families have seen success with the diet, but as with all things, your mileage may vary. If you think it might work for you or your child, here are some helpful hints to make the transition to a GFCF diet as painless as possible for all concerned.

* Don't throw away all the food in the house and buy GFCF…yet. Use what you have, but when you buy again, buy GFCF. You can check sites like TACA for acceptable foods and Hidden Ingredients for unacceptable ingredients. Familiarize yourself with the names of ingredients. Print out the list and keep it with you when you shop. Gluten and casein are in many foods you would never expect. Be a label reader!

* Keep a list of what you have tried so if you don't like it, you don't accidentally buy it again. There are some great products out there and some not so great. (you can email me if you would like...I would be happy to provide you with a list of foods from experience).

* Don't change brands of foods that are already "approved" foods. For instance, if the child likes waffles, buy GFCF, but don't change the brand of bacon you serve. Or keep the eggs the same style. Consistency is key. If you change bread, try toasting it and using the same peanut butter, if it is acceptable. Don't change the jelly.

* Find substitutes for tried and true foods. Finding gluten free foods is a lot easier than it used to be. Almost everything can be subbed out. The exception to this, sadly, is cheese. Many of the cheeses that say they are dairy free still have casein. Read your labels!

* When possible, involve the child in food choices. Teach him to read the labels and to understand what happens when he eats foods that his body doesn't tolerate well. Let him pick out some foods he would like to try, and involve him in their preparation. Kids are more willing to eat food they have helped prepare.

* Don't give in. Once you make a decision to try the diet, stick with it. It can take over six months for all traces of casein and gluten to leave the body. Give it a proper trial. The child might protest a bit, but keep at it.

* Make sure to provide a vitamin supplement so that the child is getting proper nutrition. Of course, the best vitamins are from the source food, but if the child won't eat it, vitamins are better than nothing. This is a good suggestion for all kids.

* Consider probiotics, which add good bacteria to the intestinal flora to balance the digestive system. But watch out that they don't contain hidden dairy!

* Limit processed sugars, and cut out artificial colors, flavors, HFCS (high fructose corn syrup) and preservatives from the child's diet when at all possible. These ingredients can cause problems for sensitive kids.

Some local sources of gluten free products follow, but be sure to check the ingredients list because gluten free is not necessarily casein free as well.

Whole Foods- Tustin (there is even a Special Diets page where you can download product lists)

Sprouts - list of locations in Orange County with map

Henry's - list of locations in Orange County with map

Trader Joe's - list of locations with map

Mother's Markets - list of locations in Orange County with map

Don't be too hard on yourself if it isn't perfect... you are learning and so is the child. The goal here is to transition to the diet, not be a Nutritional Hardnose. If you are stressed, the child will figure it out, and he will become stressed as well. With a bit of practice, you will be an excellent label reader and have a collection of foods that work for your child and maybe for you, as well.

Lullabye and good night, already..before I lock you in a closet*

I used to have alone time. It was wonderful. Nine o' clock rolled around and my kids were in bed. Oops, sorry! You have five minutes until bedtime. No I can't help it, that's the rule. As though it wasn't within my control. And they bought it. Never questioned it, it was a House Rule, and they would obediently trot off to bed. I was blessed. Until this year.

My oldest daughter, at 16, thinks she can stay up as late as she wants. There are times I go to bed in exasperation, telling her to lock up when she's done. Mostly, she stays out of our way, so out of sight is out of mind. Mostly. Now my son, He Who Used to Sleep by 9, is up past 10 as well. Puberty may be striking, and it is playing havoc with his sleep schedule. He used to be up with the sun, now he actually sleeps in a few days a week. But he is also not tired at bedtime, and too busy to follow the slumber rules. Trying to get him off of video games or to stop reading a book is damn near impossible. And when I do finally get him to go to bed (tonight was quite after 11) he gets up at least five times.

Tonight was no exception. I was being tag-teamed by the both of them.Finally, after medicine to help JBug's bug bites, a question or three, she finally left us alone enough to get through the television show we had on DVR.(Doctor Who, thank you very much). By that time, it was midnight. AND…the dog needed to go out. Pause the show, again. Then JBear showed up,with a broken fingernail, and needed a bandaid. And shortly after that, he needed Advil because his legs hurt. And a bit after that, he needed a drink. And then the bathroom. And, of course, each time, we paused the show and waited.

I don't know about you, but my Mom Sense just cannot relax as long as I have a kid who isn't tucked in for the night. Call it obsessive, call it anxiety-prone, if you'd like. I call it being on duty, 24/7. And I cannot let go. I have tried. But Mama Bear just stays at the ready. Once the little cubs are safe in their dens, I relent, breathe deeply, and have a martini. Of course, if they don't get into bed before midnight… no cocktails for me. And no cocktails makes for a very unhappy mama.

And, as the old adage goes, "If mama ain't happy, well you can just get your butt back to bed or so help me God, I won't be responsible for what happens next." Or something along those lines. I could be paraphrasing, but that's how I remember it, anyway.

*I am only kidding about that last part. Mostly.

How about you? How do you get your "alone time?"Click and tell me in comments

T, who is up way too late in order to get some time to herself

What to do when you have a rigid kid

High-Functioning Autism can be a challenge in a lot of ways, but none so much as ridigity. The decision to support a cause or idea, beyond what would seem normal is familiar territory for parents of those with autism. Kids can be downright unreasonable. And of course, kids can be somewhat rigid. This is especially true of kids on the autism spectrum.

Some Examples of Autism Rigidity:

* interests or hobbies

* clothes they wear

* foods they eat or refuse to eat

* sensory sensitivities, such as noise, and textures

* unreasonable fears

Often when it occurs, a parent may feel blind-sided, since it feels as though it came out of nowhere. How perseveration gets started is one of Life's Great Mysteries. What causes a casual interest to become an all-encompassing quest? Why does a compliant child suddenly plant her feet and refuse to budge? Is it an internal dialogue? Is it media influence? Is it the cereal she had for breakfast? Whatever it is, parents are hard-pressed to stop the train once it starts. Sometimes, the rigidity comes from changes in the child's perceived schedule. This s very common in a child who otherwise isn't particular about their environment. A family member travelling; plans that change; a situation outside the realm of the child's "script." These are all opportunities for parents to practice their coping skills. Kids with autism simply don't bend well. It's true. They lock on to whatever is important to them at the time, and they will defend that position until either, you give in, or you deescalate the situation. In the case of clothes, a child may decide to only get dressed if one particular outfit is available. You have some choices then:

* You can find the outift, figure what the heck and live to fight another day

* You can cancel plans and let her sit around in her pajamas all day

* You can try to reason with her... and grow old in the process

* You can strongarm her and force her to bend to your will

Some days, it is easier to retreat. And in the grand scheme of things, it is often the best thing to do. No one wins a power struggle. If you force a child to sit down, she's still standing up in her head. It is easier to cooperate and find a solution than it is to force anyone to do anything. There will be time for teaching...in fact it is necessary. But the middle of a conflict is not the time to try to teach. They aren't listening, anyway.

Flexibility is Key

The point here is that by being flexible, even after the fact, you can frequently manage to bring a difficult situation back under control. Often with autism, the plan you make is the one that you have to break. Or, rather, rethink. If the plan is stone-cold, rigid, it will break, and it's not pretty when it does. Be open to change. Model the behavior you want to see in the child. Show the child, who cannot, at that moment, disengage, HOW to back down, and how to find a solution that everyone can live with. Change your plan.

It may seem counter-intuitive to suggest that plans change. Kids with autism really like structure. They like to know that things are arranged the way they want (and often need) them to be. But, as the adult, it is much easier for your to be flexible than it is for them. The plans change because you get that the need is for a different plan. By tweaking the agenda, you can often avoid a greater meltdown. And isn't that what we all really want?

How about you? What have you found that works to "unlock" a stuck kid? Click here to share your wisdom!

T, who knows when to hold 'em and when to fold 'em

How to talk to a child with Asperger's without pulling your hair out...or theirs! (Part 2)

Continuation of Part 1, yesterday's post on how to talk to a kid with autism.

• 3. Be HONEST. Just tell him you can't talk about that right now. That you are busy, maybe later you can discuss it. He probably won't be hurt by it, he will appreciate your candor. But if you tell him this, know he has the memory of an elephant and long after you have forgotten? He will find you.
• 4. Play a game. I Spy, "I'm Thinking of a Word..." "When I Go To the Moon I'm Bringing..." these are all good choices. But don't be surprised if he kicks your butt. The kid has an amazing attention to detail and his memory will blow you away.
• 5. Engage in an activity you both enjoy. Go to a ball game. Do a craft. Find time for one-on-one. Just know we are working on good sportsmanship to board games and video games...win or lose, he will shake your hand and say, "Good game!" Be prepared.
• 6. If all else fails, shoot me a look. I will rescue you both. Under no circumstances be unkind to him...he will remember it. as will I

Remember that he is a work in progress. He is really trying. If he is having a hard day, let me handle it. Please don't judge my parenting, or question my decisions. I know my son, I know what helps him calm and what triggers him to fall apart. And realize that just because yesterday he had a conversation with you about physics doesn't mean he can do it again today. He may be able to...in fact, he probably can.

But, the difficult thing with autism is that it is different everyday. I continue to teach him, and he continues to grow. And really, that growth is all we can really ask of anyone. Get to know my son...or any kid with autism. I would bet you will find a great kid with a really unique way of looking at things.

Aspergers truly makes the world go around. Silicon Valley? High population of Aspergers Syndrome. Computer engineers? Electrical engineers? Scientists? Maybe one day that will be my son, because he can hyperfocus. (his father is a software engineer, you connect the dots)

My son brings a lot of joy to my life, simply because he looks at things so much differently than I do. If I kept him at home, you would miss the chance to experience this. And really, diversity, neuro or otherwise, really does make the world go around. See you on the plane. Or in the grocery store. Maybe at the library...

So this was what we did a couple of years ago...what do you think? What works in YOUR house?

T, who learned this all the hard way

How to talk to a child with Asperger's without pulling your hair out...or theirs!

In an ongoing series, I have been posting some of my older posts, for new readers who have recently found me. (ok, you got me, I am just pressed for time. ;oD) In all seriousness, this is one of my favorite posts...written almost three years ago. hope you enjoy it.

The biggest hurdle that we face with my son's autism is that he looks so normal. There is an expectation for his behavior that sometimes he just flat cannot meet. But you can't see what is wrong with him at first glance. He isn't in a wheel chair. He hasn't lost his sight. Most of the time, he hears what you say. But he has a disability. I hate calling it that, but that is what it is. Yes, he has autism. That's not the disability, though. His disability, you ask? Peoples' attitudes. Judgmental women at the grocery store, and anyone who thinks he "should" know how to behave and that he is just the product of over-indulgent parents.

He deals with the attitudes of other children. Kids can be, if not cruel, just not understanding. They think he is weird. He talks funny, with more of a drone than other kids. Sometimes, especially when he is excited, he doesn't enunciate well. His topics go on and on. Frankly, many of his peers don't know what to do with him. It's hard. But you know what? He exists. He has a right to live a full life. I am not going to keep him at home because he might be a little strange in his talk about movie characters. He needs to learn how to interact with others, and some need to learn to be more tolerant. They can help each other.

The hardest thing for me to watch as a mother is to watch my son struggling socially to fit in. He tries so hard, is very gregarious, wants to engage people and interact. He just... isn't very good at it. Autism isn't a very good friend. Granted, I would imagine I am more tuned into his social gaffes than others may be. In fact, others seem to enjoy him. I am concerned when he is around other adults that he will talk their ear off and then get his feelings hurt. It worries me. I really try not to be, but I verge on being hyper-vigilant when he is talking to others, especially adults. (his favorite people to interact with). They talk about how sweet he is, and kind. And yes, he is all of those things. But he's also annoying as hell.

I have talked with him about possible conversational approaches he could take. We have worked and role-played in order to figure out the give and take of conversations and how they can be approached. We discuss non-verbal cues that show you someone has grown weary of the interaction and is ready to move on. But he just doesn't get it. It absolutely isn't his fault, and I cannot blame him. It is the way he is wired. Lessons, especially social lessons, must be gone over in depth. We have to work out possible responses. Lather, Rinse, Repeat. He will talk to me, and we have a great talk about science, or the weather or whatever we are discussing. But as soon as he is around someone other than me or his father, it all goes out the window.

In his quest to enjoy someone else's company, to connect with them socially, he forgets everything we have discussed and goes to one of three subjects: Video games (namely the new Indy Wii game which he will describe for you, in detail all the way to the 7th level, if you let him.) What? You don't have quite that much time? Well, of course, my son won't figure that out...that's where I come in.

He also will discuss Lego, the rabbit from Monty Python (and no he has not seen the movie, just a few YouTube clips) and whatever he is into that month as well. Guaranteed to make your eyes glaze over and have you thinking to yourself, "Just look at the time!" But, give the kid a break, he really does try. And he wants to interact with you. He genuinely likes you and he is likable, too.

Here are a few suggestions to make it less painful for you both:

How to Interact With a Kid Who Has Autism

• 1. ask questions about things you are interested in. Get him to talk about what you want... lead the conversation. If he starts in on Indiana Jones, change the subject...make it something related. "Yes, Indy was a really cool movie, but what did you think of Wall-E?" "Really? What did you like about it?" If you steer the conversation, it will go more smoothly.
• 2. bring someone else into the conversation, and throw my son a bone...er, rather, a thread of conversation that he and the other person has in common. Once he is talking to the other person, escape! Yes, I am mostly kidding with this one! Besides, he would just catch you...

Tomorrow...Part 2

how about you? What works in your house? Talk about it the comments.

T, who hopes this helps you with autism

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Rule 1: Expect nothing but laughter

I don't find myself funny. I have been told people enjoy my humor, but honestly? Every time I hit publish, I second guess myself and have to walk away from the computer so that I don't delete what I wrote. They say that humor is a defense mechanism; a way to keep what cuts you in two from finishing the job. It is how I bind the wound and staunch the flow.

Life delivers the kill-bite, and laughing it off is my way of sidestepping the throat-ripping Pit Bull of Pissdom. That last bit didn't sound right. The Boxer of Bitchy Life? How about the Afghan of Autism? Ok, that is all kinds of ridiculous. See how good I am at distracting myself from the frustration at hand?

Some of my best friends are very funny. In fact, I have a hard time relating to anyone that doesn't find life funny. I mean, really, what is life but a comedy of errors? If I see the pathos in the product, and you can't appreciate it? We probably aren't going to stay friends. I don't mean that you have to laugh at my jokes all the time, because, face it, I'm not that funny. But if you don't see at least a bit of humor in the Situation we call life (as opposed to the guy in New Jersey) then you pretty much cannot relate to me, and to most of the people I know. Also, if you laugh with me, I am more apt to buy you drinks. Ask my friends if you don't believe me.

Sometimes humor covers up anger. And of course, anger is always a secondary emotion. Because underneath, just like the layers of an onion, is more: hurt is often what lies beneath for me. It hurts to raise children with autism. No, really, it does. I am not being flippant. It sucks, much of the time. And though I don't get mad at my children, I am often mad at God. Because, face it, through his Infinite Jesting, he has placed me as the mother of these children. I mean, he has to be laughing, right? How else do you explain:

• I like quiet. I crave quiet. Screaming, though I do it sometimes, really upsets me…puts me on high alert. Enough of it puts me on edge and makes me snippy. Especially if there is nothing I can do about it. JBean is the Child of Sound and Thunder. LOUD is her middle name. Try to tell her to lower her volume? Her brow furrows and a storm passes across her face and I get, "NO NO NO NO I AM NOT YELLING MAMA! YOU are YELLING! I'M TRYING, MAMA! I'M TRYING! [yes I know, you are very trying] That last bit? I don't say out loud. I just think it. Real hard. "I AM NOT YELLING! YOU'RE NOT LISTENING TO ME! STOP TALKING OVER ME STOP TALKING OVER ME…" ad nauseum.


• I enjoy my own company, and am happiest sitting by myself, reading or writing or even watching tv. I have a youngest child who must sit thisclose to me every single second of every day. There are reprieves, but they are few and far between. She cannot do school work on her own, she needs me to walk her through it. Getting dressed is often too hard for her, there are too many choices. And she cannot leave me alone long enough to let me write this post. It is beyond annoying.


• I don't like to be touched. I, of course, don't live in a bubble, so therefore I prep myself to deal with the inevitable hugs, squeezes, touches and lap-sittings that come with having a sensory-seeking kid. I am not touch-avoidant, as much as begin to feel overwhelmed by the onslaught of her screaming fits and want to retreat for safety. Of course, right after a blow up is when she needs to be held. That is absolutely the worst time for me.

Expectations are everything. I expected, when I had children, to have a child I could dress up and take out. I expected she would enjoy going places and chatter excitedly about it. And I have that. But I also have a child who has to do her homework in a certain order. She needs to have her socks on *just right.* Dressing in the morning is like attending a meeting at Camp David… it has to look good, feel good and be neither too hot or too cold; it cannot be too short or too tight. And it has to reflect the way she is feeling. We have tried the week-long organizers, but she didn't want to wear what she sets aside at the time. Insisting caused such a shit storm that it just wasn't worth it. The crayons need to be sharp enough. Make sure to give her plenty of notice if you want to walk out the door to get somewhere on time. Chances are, if you don't, she will come unglued, and then you aren't going anywhere.

So, to combat all of this? I laugh. A lot. And make others laugh, too. I see the humor in the unfunny. Honestly, there are few things I cannot find the humor in. Death? Check. Dismemberment? Check. Autism? Anger? Augh? Check. Check. Check. It is absolutely a matter of survival.

They say, "Laugh, and the world laughs with you." And here you are.
"Cry and you cry alone." And that's why I choose humor.

T, who is laughing, right now, on the inside

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It's not a matter of more time, or better skills, it's a matter of quiet

I can't write. Part of the problem is that it's Monday. But it's also just...life. Every time I sit down to put my thoughts on paper, some crisis hits and I have to break out the proverbial fire hose or do recon. I have so much to say, but I cannot get my thoughts in order. Chaos reigns supreme in my house. As I write this, my youngest child is sitting here alternating between, "I don't care what you say!" over and over again, and "EVIL!" and just screaming. There is only so much that you can listen to this before you start to tune it out. And don't tell me to try to make it better, nothing does. It is Monday, after a particularly busy weekend, and this is par for the course. Albeit, a little louder than usual. Such is autism in my house.

As I write this, my son is in his room egging his sister's behavior on, and trying to see how far he can push me. He is supposed to be writing an essay, but unless I stand on his neck, figuratively speaking, that's not going to happen today. He just slithered past behind the couch thinking I didn't know he was there. Now, he is making faces at his sister. Again, he thinks I don't know. I am about ready to pounce on him so we can work on his double-digit multiplication, so he is trying to maintain a low profile.

I had to resume this post after I dealt with JBean. She was out of control. Hitting me and throwing Legos, not enough to hurt, but enough to be really annoying. I finally picked her up and deposited her in her bed, with her screaming, "You're hurting me! I really wasn't she was just overly sensitive. I tucked her into bed, with her weighted blanket, including her arms. Think: swaddling a baby to calm them. I sat next to her with my legs over her, not my weight, just my legs. She was screaming, but I know her well enough to know what calms her.

After a bit, she was quiet, and I could see the comprehension shine in her eyes once again. I picked up the closest stuffed animal, which happened to be a multi-colored patchwork elephant, and told her to hold him. Then I asked her what color she was feeling. She pointed to red. "So you are angry?" She nodded her head. I told her it was good that she could tell me how she was feeling. Then I pointed to white. "This is peace. It's a good feeling, and if you add it to the red, you can end up with pink. Do you think you could be pink?" She nodded, her eyes wide. "I could try, " she said.

Then she pointed at purple. "What's that, " I asked. "it's 'I'm Sorry," she said.

And she was.

Crisis averted, peace restored. At least until lunchtime, anyway.

But this? Is why I can't write.

T, who keeps trying

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The one where I am given a book: My Brother Charlie

I am completely remiss, and a terrible friend. I wanted to tell you all about the book my friend Chris gave me when she attended a children's literacy event. She brought me the new book by Holly Robinson Peete and her daughter, Ryan. My Brother Charlie is about Charlie, a boy with autism, and the family who loves him. Callie and Charlie are twins, but only Charlie has autism. The book is told in the voice of Callie, who loves her brother, but admits life with him can be hard sometimes. It is sweet and heartfelt, and I have to tell you, when I read it to my daughter, I get a lump in my throat. The pictures really set the tone of the book, straightforward and bright. Charlie can ruin playdates, but he loves the dog and gives great hugs. Throughout the book it is obvious how much Charlie is loved by his family.

Thank you so much, Chris, for thinking of us!

T, who has the best imaginary unicorn internet friends

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I'm so aware of autism I'll give you the shirt off my back!

Autism Awareness month is almost half over, and if you don't already have your autism awareness t-shirt, what the heck are you waiting for?! Yes, I know we are already aware of autism, but believe it or not, I still run into people who don't know about autism! No, really. I swear. Like the sweet grandma at the grocery store who thought my daughter was just "overtired." So our job is not done, friends. I don't know about you, but I often don't want to have to tell people in so many words about my kids. I let my shirt speak for me. I know, I know, I don't have to tell them anything, but work with me here...

All the cool kids are wearing them… don't you want to be one of the cool kids? Well? Don't you? That there is my son, and he is the coolest of the cool. I didn't plan to have him wear red, it Just Happened. I enjoyed taking the pictures with him. He was a really good sport, as usual. He is used to Momma's bizarre bloggy requests. A t-shirt picture was easy! This is where I got mine…isn't it snazzy? Fits well, and hey, it's red! (yes, I know the "official" color for autism is blue, but I never claimed to like boxes much. Well, that is, unless they are small, blue and velvet and contain jewelry. Barring that, I think the red looks pretty good, don't you?

You know you want one! Go. Now. And just to sweeten the deal (because, after all, I an nothing if not sweet) Cheap? Shame on you! You can enter the following code for 10% off ANYTHING on the site Custom T-Shirts..but you know what you really want is an autism awareness shirt, right?

just enter the code at check out!

sendchoc10

T, who figures her favorite color this month is red

I was not compensated for this post, but I did receive a really cool t-shirt

picture taken with Canon T1i. Edited with Picnik which makes my photos look like a rock star. Or pro level. Or something.

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The One where I get schooled...again

Image via Wikipedia

Homeschooling can be a lot of fun. What? Stop laughing, no really. I mean, the times I lie awake at night worried that my son can't do Algebra and my daughter can't read well enough are just a million laughs. The stress and responsibility I feel when it seems the kids cannot function academically, socially or behaviorally the way I believe they should, well, it makes me want to drink. And I am not talking about Tang or Milk here, either. Send Mama a martini!

Often, though, when I feel like I have reached my limit…when I think I am doing my children a great disservice by schooling them at home and that they would be better off in a public school setting, with all of its weaknesses and the lack of placement for higher-functioning autism/Asperger's? Well,the kids go and make cognitive leaps, seemingly overnight. Almost like they have to prove me wrong. They show me that it isn't that bad, and that it always gets better. Or, you drink. Something the kids didn't show me. And just an aside, I talk about drinking, but do very little of it. It doesn't make a very good coping mechanism, to be honest. Karate works better. And yoga. And screaming. In the car, with the windows up. By myself. I tried it once with the kids in the car, and they flipped out. Thought I grew two heads. Note to self: save the theatrics for alone time, mama!

In any case, I have been laboring over my daughter's lack of reading fluency. This week, JBean started to read. And she did it the way her brother did…which is what I kept telling myself, even as I second-guessed her progress. "She will get there, and it will seem almost overnight." This is my wakeup mantra when I want to close the book on the whole homeschool experiment. One morning she woke up, wanted to read with me. I obliged. One hundred pages of Dick & Jane later? She is finally a reader, in her own mind. I knew she could read, but she didn't want to call herself a reader, she thought she wasn't "good enough." Yes, she read all of those pages in one morning, and was still rarin' to go when I called No Joy and begged for a break. My ears were tired!

This morning,needing an audience for her newest parlor trick, she waylaid Poppy, our pup, to show her what she had learned. And, as they say, a picture is worth a thousand words:

So. I will keep homeschooling my children, because I believe that it works best for our family. They will continue to do outside activities and lessons and we will treasure this time together. They will grow and mature, and continue to trust themselves, as I try not to undermine that. And we will continue to love one another. That is, when we aren't wanting to hurl Nerf darts at one another. Although, now that I think about it...that could work. We'll just call it P.E. Kids need P.E. don't they? What did I do with that blasted Nerf gun?

T, who learns so much from homeschooling her children

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She's a tough little nut to crack

"Mama, I don't LIKE it!" My JBean wasn't happy. Although this is not that uncommon, it was still a concern. The Nutcracker was coming up, and she is due to perform.

Last year, she was a flower. "I liked being a flower mama. Flowers are graceful, and princess-y. It was a pretty dance." This year, they are lambs. She is less-than-thrilled.
"I hate the Lamb Dance! It's stupid. The costume is silly, I look like a little kid." I figured reminding her that is indeed what she is? Not so helpful.

Early on, I told her she didn't have to dance if she didn't want to. The Stage Mother? I am the furthest thing from that person. You won't see me pushing my children against their will. I have a theory about extra-curricular activities: if it isn't fun, what's the point? This may be because I was, if not born with two left feet, in possession of them now. Dancing well is hard for me, and I don't have autism. Still, if I were to try to dance, with actual choreography, you would think I was having a seizure of some sort.

I have given her every opportunity to bow out gracefully. She won't be a prima ballerina; she is still in the first-level class. All of her friends have pretty much moved up a level. She just isn't ready. As a parent, my heart hurts just a little bit for her. I worry as she gets older, girls will make fun of her. But she won't quit. She assures me that she wants to dance. And she does. She just doesn't love this dance. Still, she is trying, and that's all we can ask. To me, that in itself is a victory.

Now I am looking for a triumph over the fear I have for her. The great, white-hot worry that wakes me at night. I think of the time that is coming, soon, or not-so-soon, when the girls look at her and laugh. When they look at her, whispering behind their hands. When it hits her just how behind she is, and that without 10,000 hours, she just isn't going to get those dance solos that she may be wanting. She will be tried, and found less than adequate. And though we cannot keep our children from pain, it is still a very difficult thing to watch. A lump in my throat and tears pricking my eyes, I wait.

T, who loves her little lamb

Wanted: 10 minutes peace, but I'll settle for 5..ok make that 3

"Parents are not particularly interested in justice, they are interested in quiet." -Bill Cosby

I am a pretty easy going person, for the most part. No, really, I am. Unless I am tired, and then all bets are off. I can be irritable, easily frustrated, noise sets my teeth on edge. This week, I haven't been sleeping very well. I just got new braces (the clear kind...my ego is intact) and they are making it hard to rest. Also, there is a lot going on, and sleep is what suffers. I don't want to make my friends' problems about me… but one of my best Internet friends just found out her husband's cancer has reoccurred, and I am hurting badly for them. Also, another Internet friend is in a hospital ICU fighting for her life back. A good friend is being absolutely screwed over by her ex husband. My daughters have been fighting illness. And me? I am just trying to find some justice, some equilibrium and some peace.

Unfortunately, my youngest, JBean, doesn't understand what "lower your voice," "be quiet, please," "silence" or "FOR THE LOVE OF GOD, NO MORE NOISE!" means. She has no idea how to do anything quietly. It just isn't in her makeup. Ok, maybe it's the autism, or maybe it's just her, but enough. Her stim is making noise. She sings, constantly. She sings while playing. She sings in the bathroom. She tries to sing while she eats. She sings herself to sleep. And my ears are tired.

I cannot tell you what I would give for silence. And not the silence where someone else jumps in with a request once they hear dead air for more than 5 seconds, either. Gee, do you think that happens a lot around here? Part of autism is not always getting the nuances of the meter of conversation and where it is ok to break in. So there is a lot of stepping on others' words here. The kids talk over one another, and don't always hear each other. And I am just ready for no more chatter.

I am thinking, an hour, maybe two, of just blessed quiet. If you ask her to be quiet, she talks at the level she thinks is quiet, which is just below the decibels of a jackhammer. And she is just about as repetitive. Driving her noise into my brain, until I want to run screaming, into traffic. Now, this doesn't seem like such a bad plan, really. I figure one of two things will happen: 1) a car will run me over and save me from the noise or 2) they will commit me for being unstable.

And really, the hospital is quiet, for the most part. And I would get to lie in bed all day. And the hat factory wouldn't be such a bad place, when you think about it. Maybe I would finally learn to knit. Hats? Either way, the hospital or the funny farm, at least it would be quiet with no more demands. Three square meals a day,that I don't have to cook. Someone taking care of my every need. Time to nap. Oh, don't tell me you haven't thought about it! Hell, that would just about be a vacation. Where do I sign up?

T, who just wants a break

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can you check this out for me?

I don't normally do this, but I am linking to the article on new autism rates I wrote at Examiner.com simply because I am still reeling at what I found out. I am having a hard time believing it but the CDC appears to be trying to bury new numbers as to the rates of autism in the US. The rate is now 1 in 100, or 1% of all kids in the United States will be diagnosed with an Autism Spectrum Disorder. WHY isn't this all over the news? Your guess is as good as mine. Read the article. What do you think?

T, who is NOT a Conspiracy Theorist, but is searching for an explanation

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