Health 2.0: Stay Focused on the Goals

Ben Heywood, co-founder of PatientsLikeMe, outlines simple (but difficult) goals that those in the health 2.0 space must accomplish. Based on his post I take it that he highlighted these during his keynote address at the second Health 2.0 Northeast conference.

His simple but eloquent message to the health 2.0 community:

I believe we, as the eHealth community, need to focus on two major goals: 1) solve patients’ problems, and 2) create business models that allow us to do #1.

Successful companies must show real and tangible benefits directly to the patient consumer. As one who regularly participates in the health information discussion and debate as West Virginia moves forward with its health information network infrastructure -- I often try to step back and ask, like Mr. Heywood, the simple question, "does this help the patient -- why and how?"

To be disruptive and successful the current crop of creative companies have to show a direct and immediate impact on improving care and quality linked to a reduction in cost or a value proposition that the increase in cost is worth such expenditure.

Thoughts on HIPAA and Privacy: NYT Article on PatientsLikeMe

First, an apology to my regular blog visitors for the lack of posts over the last month. Busy, busy, busy at work and home. No time to blog. The last couple of days I have been experimenting a bit with micro blogging via Twitter as a result of a conversation with my firm's IT director and blogger.

Quick post to this interesting NYT article, Practicing Patients, about PatientsLikeMe. The article covers some ground on some of the questions that periodically swirl in my brain regarding HIPAA, privacy rights, who is (should be) the steward of medical information, pro/cons of patients (consumers) self treatment, etc.

I particularly found interesting Alan Westin's taxonomy of Americans' attitudes toward privacy. The article states:

In 1990, Alan Westin, a political scientist at Columbia University and an expert in privacy issues, offered a useful taxonomy of Americans’ attitudes toward privacy. On one end of the spectrum were what he called privacy fundamentalists — the 25 percent of Americans who feel that their privacy is paramount and that no one, not the government or corporations or their family, should have access to their personal information without explicit permission. At the other end of the spectrum were the privacy-unconcerned — about 15 percent of Americans — who paid no mind to privacy issues and didn’t figure they had anything to hide. In the middle were the vast majority, the 60 percent whom Westin called privacy pragmatists: those who felt that they could give a company they trusted some information — birth date, ZIP code, telephone number — for particular benefits.